有專家指去年已向醫管局交研究罕見病結果 冀納入藥物名冊
即時港聞
發佈： 2019-03-14 08:14
撰文： 無綫新聞
有專家表示，去年已向醫管局提交研究結果，期望能放寬結節性硬化症資助用藥門檻。
香港大學兒童及青少年科學系主任陳志峰表示：「當時訂現有(臨床)標準時，都是跟國際其他地方所定的標準，有新的資料發現這種藥，可以控制到結節性硬化症患者，出現的癲癇或羊癇，去年年中、年尾左右，可否把這個治療的標準，都納入藥物名冊內。」
香港大學兒童及青少年科學系主任陳志峰表示：「當時訂現有(臨床)標準時，都是跟國際其他地方所定的標準，有新的資料發現這種藥，可以控制到結節性硬化症患者，出現的癲癇或羊癇，去年年中、年尾左右，可否把這個治療的標準，都納入藥物名冊內。」
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